Blog
- New Book on Hypermobile Ehlers-Danos Syndrome
- The Evidence for Fat
- Rewire Your Pain
- Caring For The Mother Ship
- Hypermobility Syndrome Website
- Kids Pain Resource – PainBytes
- How EDS Can Feel Like A Chain Reaction
- Pool Party Hydrotherapy Programme For Girls with Ehlers Danlos and Hypermobility Disorder
- Recent Improvements in Pain Services In W.A.
- Finding Comfort After Your Child’s Health Crisis
- Finding A Way Forward When You’re Feeling Overwhelmed
- Notes On Getting Through Painful Procedures
- News About PMH Complex Pain Service
- PMH Pain Service To Start This Month
- PMH – Important Questions Parents Are Asking About The New Pain Service
- PMH – How Pain Services Can Be Even Better for Young People in WA
- Be The Boss of Your Pain – A Book For Children
- What Makes Something Better is Connection
- No More Delay For PMH Chronic Pain Service – Let’s Make It Happen Now
- New Chronic Pain Service Announced For PMH
- Kids Overcoming Pain Education Programme – Perth 2013
- Pain Week Events in Perth This July
- “What does it feel like to never be in pain?”
- painHEALTH – The Lastest Information for West Australians Managing A Pain Condition
- What’s Chat Rheum?
- “It’s like my legs are being sat on and crushed by an elephant”
- How A DIY Medical History Can Help Your Child
- Amusing TED Talk Explains Pain For Teenagers
- 5 Minutes To Understand Pain
- Let’s Look At How The Brain Reacts To Pain
- Parents of Kids With Arthritis Support Group – Perth
- “My Legs Have Turned To Jelly”
- “I Feel Like My Hand Is Going To Break Off”
- New Techniques for Blocking Pain Signals
- Super Better
- Still No Progress On Dedicated Pain Unit at PMH – Letter from Philip Aylward
- Dr Kim Hames We Need A Pain Unit at PMH
- Why Would A 1-2 Year Old Prefer to Be Held Than To Move?
- Health Minister Acknowledges Lack of Dedicated Pain Unit at PMH
- Interviews on ABC Radio for A Dedicated PMH Pain Unit
- Pain Article Library at Pain Australia Website
- “I’m trying but my body doesn’t do what I tell it to” – A Seven Year Old Describes Ehlers-Danlos
- PMH Needs A Dedicated Pain Unit – Here’s How You Can Help Make It Happen
- Young People With Pain Conditions Are The Best Judge
- The Transition from Adolescent to Adult Health Services
- One Day Pain Conference In Melbourne – 1 April 2012
- Let’s Look At Formaldehyde And Chronic Fatigue Syndrome
- Chronic Fatigue Not A Virus
- A Diagnosis of Hypermobility Disorder and Juvenile Arthritis
- My Christmas Wish For A Pain Unit At PMH
- Don’t Let Pain and Fatigue Limit Study Options
- What Skills Do You Need To Parent A Child in Chronic Pain?
- Here Is A Useful Iphone App For Managing Chronic Pain
- Visit The Website For Chronic Pain Australia
- Can Hypnosis Help Young People With Chronic Pain?
- Kids, Sport and Ehlers Danlos Syndrome – a Mum’s Perspective
- Elizabeth Forrester Joins Our Helpful People List
- What Would The Dalai Lama Say To Us
- Jo’s Juvenile Rheumatoid Arthritis Story
- “It’s All My Fault” – Stories Parents Tell Themselves
- Ehlers-Danlos & Hypermobility Disorder Resource
- Why Would A Child Get Tired Really Fast?
- Reflective Listening Can Help Kids In Pain
- Getting Real About The Terrible Things In Life
- How To Avoid Being A Burnt Toast Crust
- A Child With Tired Legs?
- What To Read When You Feel Awful
- Why A Young Person Would Feel Old?
- Can Food Intolerance Influence Joint Pain?
- Why Movement Is So Important for Kids With Chronic Pain
- More Say For Kids In Hospital
- A Castor Oil Hot Compress Might Help
- How Weather Influences the Reporting of Pain
- Myths about Musculoskeletal Pain
- My Whole Body Hurts – Mild Ehlers-Danlos
- Centrelink Follow Up- The 13 Week Rule
- Moving House In The Middle Of A Medical Crisis
- Ehlers Danlos Diagnosis Can Lead To A Community
- Let’s Open Our Minds To Educational Options
- What A New Diagnosis Does To You
- Brenda Walker Takes The Pressure Down
- “My Brain Hurts” – One Child’s Message To Mum
- Alternative Medicine and Joint Pain
- How To Get Resources for Your Child At School
- TMJ – Arthritis and the Jaw
- Pediatrician’s Guide to Ehlers-Danlos
- Growing Up With Juvenile Arthritis
- Ordinary is EXTRAORDINARY
- Comedy for Comfort
- Those Ouch Moments
- Ehlers-Danlos And Your Eyes
- What Are The Work Options For Young People With Arthritis?
- Home and Away Dads
- How To Swap Everything And Keep Your Husband
- Because I Am Imperfect
- Teenagers Set Their Own Agenda
- What Do We Know About Sleep And Ehlers-Danlos Syndrome?
- Jolly Good Julia!
- How To Build Resilience In Our Kids
- The Mother of All Jobs
- Ehlers-Danlos List of Descriptive Phrases
- Living with Temporomandibular Joint Disorder (TMJ)
- “My Muscles Feel Heavy”-How Children Describe Ehlers-Danlos
- What is Neurofeedback and How Can It Help Kids In Pain?
- Arthritis Foundation Hydro Pool List
- Caring For A Child With Arthritis
- What To Pack For A Hospital Stay
- What Is Acceptance & Commitment Therapy?
- How Food And Family Help To Cope With Chronic Pain
- Your Own Free Library Service – PMH Library
- What Does Coping with Chronic Pain Look Like?
- Who Is Your Rheumatology Liaison Nurse?
- Chronic Pain Support in Group Sessions
- Important Message for Parents of Children With A Chronic Condition
- Pain Flare Ups: Is It A Medical Crisis or A Management Crisis?
- Ice Breaking: Assisting Children During Hospital Stays
- The Tough Road for Siblings of Kids With Arthritis
- Chronic Pain Management – Small Words Give Great Hope
- Parenting A Child With Arthritis – Some Struggle Is Healthy
- Kids With Arthritis – Flying Solo On Ward 17
- The Art of Being Angry When Your Child Is In Chronic Pain
- Why is Joint Pain Made Worse By The Weather?
- Advanced Fear Strategies for Late Night Worriers
- “Excuse Me Miss” – Why Don’t Kids Get Heard At School?
- Taking The Pain Out of Managing Medications
- What A Difference Hydro Makes
- Joint Pain Relief