I had a brief conversation with another mother today about sport and school. She was telling me how difficult it is to communicate with the school about how much activity is appropriate for her daughter. While it’s been a while since this was an issue for us, it is a very familiar problem that parents […]
Archive | School Days
Kids, Sport and Ehlers Danlos Syndrome – a Mum’s Perspective
I have two children with EDS and I thought it might be useful to share some of the ideas we have worked out for ourselves. We’ve come up with a flyer that can be given to the teachers who supervise school sport. This information is probably just as useful for any child managing an ever-changing […]
What To Tell School About Your Child’s EDS
We get a lot of email about the challenge of dealing with schools. I know from experience it can be a bit complicated. Teachers have bigger classes and ever increasing pressures. To help work out the best approach we’ve invited Michelle O’Sullivan, Occupational Therapist from HypermobilO-T to share her thoughts on what to tell schools […]
Let’s Open Our Minds To Educational Options
I remember sitting in a cafe with a very stressed out Mum some time ago. She was going crazy trying to keep her child at school in the most trying of circumstances. I suggested to her that perhaps she should try to get her child a place with Distance Education. “Oh no!” she insisted, “the […]
Brenda Walker Takes The Pressure Down
Sometimes it feels like everything is coming together. My daughter has been well for a while and she is getting on with her teenage life. Then something happens – a flareup, a virus, a fall – a set back of one sort or another. For my daughter a virus or a fall can mean a […]
How To Get Resources for Your Child At School
At the parent group today one of the mothers celebrated that after four years her daughter finally had a lap top at school. To a lot of people it would seem incredible that a child in chronic pain would have to wait that long. There are resources out there but it can take a huge […]
“Excuse Me Miss” – Why Don’t Kids Get Heard At School?
This morning a group of mothers were chatting at hydrotherapy about problems their children faced at school. Children with Ehlers-Danlos syndrome who had been told by doctors not to participate in certain activities were still being forced to join in. “Why didn’t you say something?” parents wanted to know. The children all said they had […]