When your child reaches maturity they will “transition” to the adult health system. This can be a very bumpy ride so I suggest you plan for it. Ask a lot of questions well in advance. As much as possible you and your family need to think about future possibilities. How will you handle a major […]
Archive | Hospital Stays
More Say For Kids In Hospital
There is some good news regarding the rights of kids in hospitals. I just found this on the ABC News website. I will copy the quote because I am not sure how long a direct link will work for. Children to get greater say in hospital care Children will soon have a greater say […]
What To Pack For A Hospital Stay
Some times the rheumatology team will admit a child to hospital so that they can have access to several therapies. Seeing a child over several days also enables the team to get a better picture of how your child is managing. Somehow it is always you who ends up having to carry everything back to […]
Pain Flare Ups: Is It A Medical Crisis or A Management Crisis?
There is something in the universal law of rheumatology that says that flare ups occur late on a Friday or on the week-end. You have a child climbing up the walls, your whole household is on edge and Monday seems too far away. The official advice is “if you are worried – go to emergency”. […]
Ice Breaking: Assisting Children During Hospital Stays
Whether you are a constant bedside parent or a visit after work parent you can do several things that improve the hospital stay experience for you and your child. I don’t always have the energy to do these things but I know they work. Supplies Leave you and your partners favoured coffee mug along with […]
Kids With Arthritis – Flying Solo On Ward 17
As a parent of a younger child, I got used to staying with my daughter when she was in hospital. I felt protective and when she was sick or in pain – these instincts were particularly strong. In some circumstances I really did need to be there. I didn’t get much sleep but I was […]