What is Ehlers-Danlos? Watch this video for a summary made by someone with this condition.
List of Descriptive Phrases Used of Children with EDS
Here is our work in progress List of how kids describe Ehlers-Danlos and some of the positive about having the condition.
Hypermobility Syndrome Association
Joint Hypermobility Syndrome, Ehlers-Danlos syndrome (all sub-types), Marfan syndrome, Sticklers and Osteogenesis Imperfecta.
Ehlers-Danlos National Foundation
Study of Sleep Disturbances for People with Ehlers-Danlos
Kathy has sent in this link to the Ehlers-Danlos Support Group
For your Eye Specialist – Eye Care for Patients with Ehlers-Danlos
Hypermobility, Fibromyalgia and Chronic Pain. Edited by Dr Alan J Hakim, Rosemay Keer and Professor Rodney Grahame. Published by Churchill Livingstone Elsevier 2010. Highly recommended.