Ehlers-Danlos & Hypermobility Disorder

What is Ehlers-Danlos? Watch this video for a summary made by someone with this condition.

List of Descriptive Phrases Used of Children with EDS
Here is our work in progress List of how kids describe Ehlers-Danlos and some of the positive about having the condition.

Hypermobility Syndrome Association
Joint Hypermobility Syndrome, Ehlers-Danlos syndrome (all sub-types), Marfan syndrome, Sticklers and Osteogenesis Imperfecta.

Ehlers-Danlos National Foundation

Study of Sleep Disturbances for People with Ehlers-Danlos

Kathy has sent in this link to the Ehlers-Danlos Support Group

For your Eye Specialist – Eye Care for Patients with Ehlers-Danlos

Hypermobility, Fibromyalgia and Chronic Pain. Edited by Dr Alan J Hakim, Rosemay Keer and Professor Rodney Grahame. Published by Churchill Livingstone Elsevier 2010. Highly recommended.

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