There are many reasons why a child could get tired really fast. One of them is having Ehlers-Danlos.
For some time now we have been running a project recording the words children use to describe what it is like to have Ehlers-Danlos.
Thanks to Hannah we have just received some new words to add to our EDS descriptive phrases project.
Here is Hannah’s message sent via the contact form on this website-
Things my daughter says about her eds. “You get tired really fast. Sometimes you feel all floppy.”
We have added these words to our list. Hannah’s phrases might help solve a mystery for another family.
As EDS is not widely understood many people go undiagnosed and suffer without therapies that could help.
If you would like to check out the whole collection you can go to Ehlers-Danlos Descriptive Phrases.
If you would like to contribute phrases your child has used just fill in the contact form and send them to us. We’d love to hear from you.