New Book on Hypermobile Ehlers-Danos Syndrome

Hypermobile Ehlers-Danos Syndrome is a complex condition and it can be difficult for families to access useful information.

This is why I was delighted to receive an email this week from author Claire Smith about her new book, Understanding Hypermobile Ehlers-Danos Syndrome and Hypermobility Spectrum Disorder’.

The book is fully referenced, reflects the latest information (following the latest criteria from the EDS International Consortium) and can be shipped worldwide. Its ‘soft launch’ last month resulted in excellent feedback.

Here is the description of what is in the book.

Whether you are newly diagnosed, or a patient or healthcare professional this ground breaking book, reviewed by leading experts and reflecting the most up to date knowledge from the EDS International Classification 2017, brings together all the information you most want to know about the newly classified ‘hypermobile Ehlers-Danlos syndrome’ and ‘hypermobility spectrum disorder’ (previously known as ‘Ehlers-Danlos hypermobility type’ and ‘joint hypermobility syndrome’, respectively).

The author has not only managed to compile clear and concise answers to frequently asked questions, such as ‘How do these conditions overlap?’ and ‘Why are people affected so differently?’, she has provided detailed descriptions of symptoms and associated co-morbidities, and has provided comprehensive, accessible, evidence-based information relating to diagnosis and management. Exercise, physiotherapy, surgery and the psychological effects of the disorder are discussed, as well as what to expect during clinical assessment, and much, much more.

From postural orthostatic tachycardia syndrome to mast cell activation syndrome, and from clinical assessment to self-management – if you ever wished that you could find all of the information you need, together, in one place.  

The author is also Editor and Partnership Director for the Hypermobility Syndromes Association (a charity supporting those with hypermobility spectrum disorders, Ehlers-Danlos syndrome, Osteogenesis imperfecta, Marfan syndrome and Stickler syndrome). I wish her all the best with her new book and we’ll certainly add it to our resource list.

You can find out more about this new publication visit the publisher : Understanding Hypermobile Ehlers-Danos Syndrome and Hypermobility Spectrum Disorder’.