Kids, Sport and Ehlers Danlos Syndrome – a Mum’s Perspective

I have two children with EDS and I thought it might be useful to share some of the ideas we have worked out for ourselves.

We’ve come up with a flyer that can be given to the teachers who supervise school sport.

This information is probably just as useful for any child managing an ever-changing joint condition at school.

People with Ehlers Danlos Syndrome may be in your care.

Be flexible in your thinking and consider our S-P-O-R-T guidelines.

People with Ehlers-Danlos Syndrome do experience varying degrees of symptoms that may not be visible to the naked eye.

Here is an easy to understand reference poster that may assist with a greater inclusion in an activity.

Be a S-P-O-R-T
STOP– May start an activity but they may need to stop.
POSTPONE– Pain and swelling can occur at any time.
ORGANISE– Create some way of an inclusive activity. E.g. scoring, whistle.
REST– Need to keep energy in reserve.
TIRED-Fatigue is frequent and real.

People living with Ehlers-Danlos Syndrome have some or all of the following characteristics- joint hyper mobility, fragile skin, bruise easily, poor wound healing, frequent dislocations and sublaxations, cardiovascular and gastrointestinal issues.

For more information on Ehlers Danlos Syndrome visit www.jointpainrelief.com.au

This information poster does not replace a medical practioners advice.

Hope you enjoy working with this information and you get to see more inclusive interactions.

We’d love to hear about your strategies for keeping kids safe and involved at school.