I’ve just been sent a link for the Hypermobility Syndrome Association website.
It is a fantastic website and has information about joint hypermobility, Ehlers-Danlos Syndrome (all types), Marfan Syndrome, Sticklers and Osteogenesis Imperfecta.
I was particularly thrilled to see that the publications on sale include a Schools Guide. Robyn Hickmott from Risley Physiotherapy in Applecross, Perth has bulk purchased some and is selling them for $20 a copy. You can contact Robyn at Robyn@riseleyphysio.com.