Thank you for our diagnosis of Ehlers Danlos Syndrome – hyper mobile joints. I know we belong to an amazing group of people.
What is so amazing about our community of EDS families and sufferers is that you cannot always see the pain and suffering.
You can’t see the work that goes on behind the scenes to keep our families well.
Sometimes we cannot cuddle our girls as they are just so sore, but we keep upbeat with our own language of love.
We have sparkle time with our eyes. What fabulous communication secrets can you share with our other families?
My girls and I now have a name for the odd things that have been happening to them over the years. This is just great.
We know where we belong. We belong and you do too.
Welcome to our hyper mobile, Ehlers Danlos community.