Archive | Ehlers-Danlos & Hypermobility Disorder

What A New Diagnosis Does To You

Wikipedia defines diagnosis like this – Diagnosis (Greek: διάγνωση, from δια dia- “apart-split”, and γνώση gnosi “to learn, knowledge”) is the identification of the nature of anything, either byprocess of elimination or other analytical methods. I find the “apart split” bit accurate. That is how you feel isn’t it? Split apart with information that your child has a condition […]

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“My Muscles Feel Heavy”-How Children Describe Ehlers-Danlos

Children with Ehlers-Danlos  or  Hypermobility Disorder struggle to put into words how they are feeling. This morning at our Saturday Jointpainrelief group a couple of the mothers talked about phrases their children used.  Here is a few- “My bones feel like cement.” “My muscles feel heavy.” “I am sick of feeling so tired.” These children […]

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