Jane Muirhead is a Perth Occupational Therapist from EASpain, Education & Support for Pain. Jane is Project Leader for a new initiative called “Kids’ Overcoming Pain Education (KOPE)” Programme, a pilot study funded by Telethon7 and being hosted through Arthritis & Osteoporosis WA, with research being conducted by Curtin University. I asked Jane to explain […]
Pain Week Events in Perth This July
The Pain Sucks Campaign Chronic pain is no fun, but a campaign by Pain Information Initiative (Pi2) is aiming to sweeten the message a little. Look out for the “Pain Sucks” lollipops in venues around Perth and follow the ribbons to their Facebook page for more information – www.facebook.com/PainInformationInitiative. Pain Week Events in Perth This July […]
“What does it feel like to never be in pain?”
I’ve just had an email from Tracey who has sent a sentence that her son has used to talk about life with EDS. He started saying this around the age of seven and is now eleven years old. For some time now we have been collecting a set of phrases from children and teenagers for […]
painHEALTH – The Lastest Information for West Australians Managing A Pain Condition
Every now and then a really exciting resource pops up and painHEALTH is certainly that. It was launched yesterday by the Department of Health, Western Australia in collaboration with Curtin University, University of Western Australia and the Musculoskeletal Health Network. “The aim of the website is to help health consumers with musculoskeletal pain access reliable […]
What’s Chat Rheum?
I’d like to introduce you to the wonderfully innovative Naomi Creek who has been very busy in the arthritis community for several years. Naomi has recently launched an exciting new community building initiative. Here’s Naomi to tell you more about it- Naomi Creek: “I’d like to share some exciting news that I hope you all […]
“It’s like my legs are being sat on and crushed by an elephant”
It’s Easter Sunday morning and we’ve just finished the Easter hunt in our front yard. As I took photos I noticed an email had come in from Sara. She has sent in a phrase her 10 year uses to describe the experience of living with Ehlers-Danlos & Hypermobility Disorder. “It’s like my legs are being […]
How A DIY Medical History Can Help Your Child
Each of us want to get the best medical help for our child or teenager. It’s not just a case of getting in front of the right people. Those people need to have all the relevant facts to work from. Sometimes it can be difficult to communicate those facts. Clinic visits can be overwhelming for […]
Amusing TED Talk Explains Pain For Teenagers
Sometimes a medical person will try and explain to a teenager that pain comes from the brain. The risk is that the teenager walks away sadly deciding, “They think it’s all in my head”. The teenager might also decide that they are not believed. I’ve seen this sad story play out a couple of times. […]
5 Minutes To Understand Pain
Watching this video will only take you five minutes and it is well worth it. http://www.youtube.com/watch?v=4b8oB757DKc
Let’s Look At How The Brain Reacts To Pain
Oh I love a good infographic and I just found one that illustrates the difference between acute and chronic pain. It’s worth checking out How The Brain Reacts To Pain – especially the bottom half that looks at chronic pain. Over the years I’ve noticed that it can be hard for my daughter to think and […]