Posts Tagged ‘parents’


What Does Coping with Chronic Pain Look Like?

May 21st, 2009 by Julia

2277017169_2cd1182cbd_mI recently attended a workshop by the psychologist and trauma counselling specialist Michael Tunnicliffe.

He said that he is sometimes called to events like bank robberies, mine accidents or shootings where people are shocked and distressed.

He told us that usually he is taken to the person showing most outward signs of distress. This person may be sobbing and yelling. He explained that there may be other people from the same event sitting staring ahead in silence.

In our culture the wailing folk are regarded as not coping and the silent are considered to be coping well.

Michael then carefully explained that the sobbing person is already adjusting and adapting to the reality of what they have just experienced. The silent person might be numb, not feeling anything, as if the event did not happen.

He told us that he saw his job as helping people who get stuck at some point along the path of adjusting and adapting to their new reality.

I am bringing this up because people have often told me they don’t know how I cope. They tell me this because I am acting normally and therefore labelled as coping well.

If your child is suffering on a fairly regular basis you can suffer a chronic fatigue and get numb and detached. Our culture rewards this by labelling it as “coping well”.

We run the risk of tuning out to our child’s reality because we feel powerless and overwhelmed.

I think kids are remarkably able to adjust to what they have to deal with.

One thing they do need from us is the ability to be present, to share how things are for them. That doesn’t mean doing or solving, that means sitting with the truth of how things are whenever we can.

I think coping well is not being numb and detached from what is happening in your life. Rather I think it is feeling as much as you are able, when you are able, and getting help if you get stuck along the way.

Photo courtesy of timcaynes at Flickr Creative Commons


Important Message for Parents of Children With A Chronic Condition

May 15th, 2009 by Julia

Pay attention to your own needs - self care is a necessity not an option

Pay attention to your own needs - self care is a necessity not an option

Do you think of the needs of your child before you think about yourself? Do you find it hard to make time for what is important to you? Do you find yourself being grumpy more that you want to be?

My friend told me about a dream she had. It struck me that this story contained a universal message for each of us. With my friends permission I would like to share it with you.

In my dream I have a beautiful beautiful baby and I’ve been very busy
working and caring for family. One day I pick up my baby and it is floppy
in my arms. I realise that my baby is nearly dead. I feel so guilty and
ashamed because in my busyness I’d forgotten to feed my beautiful child. My
baby does not cry or complain, it is passive about its own needs. My baby is
not dead – it can be fed and revived. If the child had cried, fussed or
yelled about its needs, it would have a better chance of survival. A wise
woman told me the child in my dream is me. I now understand that if I get
too busy to nurture and care for myself, I will quietly die.

All parents are busy. If your child requires doctors visits and physiotherapy you will be very busy. Your concern about your child might drive you to even greater heights of activity. People sometimes even say – it helps if I keep myself busy.

The problem is that we might not consider our own needs as a priority in all that activity. We might not even know what our needs are.

Some parents might be able to get away with putting themselves last. Parents of children with a chronic condition just cannot afford to.

We have to schedule time to refresh our spirit in whatever way works best for us.

As the airline staff tell you, “Put your own oxygen mask on first, then assist your child.”

I am not saying this is an easy thing to do. I think it is particularly difficult if your own parents did not model doing things just for themselves.

You might experience feelings of guilt, selfishness or anxiety. Notice those feelings and make attending to your own needs a priority anyway.

As the dream so elegantly tells us – on some level getting this right is a matter of life or death.

Photo courtesy of kudumomo at Flickr Creative Commons.