There is a world of difference between information about a condition that is text book and information that is written by someone with personal experience.
Sometimes you get lucky and you find a professional with personal experience.
I recently came across a great blog post on The Eye Doc Blog that talked about Dr Diana Discoll’s address on the ocular effects of Ehlers-Danlos Syndrome (EDS) at the Ehlers-Danlos National Foundation meeting in Houston last year.
Dr Discoll has Ehlers-Danlos and she was able to put together information that people with Ehlers-Danlos can print out and take with them to their eye doctor.
Follow this link to The Eye Doc Blog.
