There is a world of difference between information about a condition that is text book and information that is written by someone with personal experience.
Sometimes you get lucky and you find a professional with personal experience.
I recently came across a great blog post on The Eye Doc Blog that talked about Dr Diana Discoll’s address on the ocular effects of Ehlers-Danlos Syndrome (EDS) at the Ehlers-Danlos National Foundation meeting in Houston last year.
Dr Discoll has Ehlers-Danlos and she was able to put together information that people with Ehlers-Danlos can print out and take with them to their eye doctor.
Follow this link to The Eye Doc Blog.
Firstly, thank you for all your hard work and support over the years.
Please feel free to join us in building a helpful website. You can contribute from either a professional or personal perspective. Your insights will be highly valued.