Comments on: Rachel and her TMJ Journey http://jointpainrelief.com.au Wed, 04 Aug 2010 03:24:31 +0000 hourly 1 By: georgie http://jointpainrelief.com.au/parent-stories/rachel-tmj-journey/#comment-23 georgie Thu, 15 Apr 2010 04:30:44 +0000 http://jointpainrelief.com.au/?page_id=173#comment-23 Hi Christine, I am 28 and reading your daughters story was eerily similar to mine, except with each specialist I saw, I told them I had hypermobile joints. I am on pain meds and have been recommended to take anti-depressants, which I also wish to refuse. I have chronic pain and my daily life is severely affected. It is difficult for me to give advice because I don't have any answers yet on how to get out of this mess. I really enjoy going to a myotherapist regularly as this helps relieve the muscle tension and have accepted that I need a lot more sleep than others. Eating a naturopathically prescribed diet helps a little, as does really, really, really gentle Iyengar yoga on a good day. Having an understanding mum and dad go a long way too (I moved back home as I work part time instead of full time). I feel that my lesson with this is that I have to learn how to listen to my body on a hyper aware level and that this will be the key to my recovery. Best of Luck Hi Christine,

I am 28 and reading your daughters story was eerily similar to mine, except with each specialist I saw, I told them I had hypermobile joints. I am on pain meds and have been recommended to take anti-depressants, which I also wish to refuse. I have chronic pain and my daily life is severely affected. It is difficult for me to give advice because I don’t have any answers yet on how to get out of this mess. I really enjoy going to a myotherapist regularly as this helps relieve the muscle tension and have accepted that I need a lot more sleep than others. Eating a naturopathically prescribed diet helps a little, as does really, really, really gentle Iyengar yoga on a good day.
Having an understanding mum and dad go a long way too (I moved back home as I work part time instead of full time).
I feel that my lesson with this is that I have to learn how to listen to my body on a hyper aware level and that this will be the key to my recovery.
Best of Luck

]]> By: kathy http://jointpainrelief.com.au/parent-stories/rachel-tmj-journey/#comment-22 kathy Tue, 13 Apr 2010 03:50:23 +0000 http://jointpainrelief.com.au/?page_id=173#comment-22 hi, my daughter began with neck and jaw pain approx 3 years ago. she is almost 8 now. We struggled with drs and the hospitals and finally got a diagnosis of ehler danlos syndrome. very similar to JHS. All her joints are painful, dislocate all the time. IT is very hard because as you say, when distracted they appear to be fine but on resting it is a disaster. We are still struggling with her jaw issues, but have been told it is just part of the EDS. At the moment she is taking painstop for the pain but it is awful when you have no idea what to do. Was nice to hear a story that was so similar to ours. Sometimes you feel rather alone! kathy hi, my daughter began with neck and jaw pain approx 3 years ago. she is almost 8 now. We struggled with drs and the hospitals and finally got a diagnosis of ehler danlos syndrome. very similar to JHS. All her joints are painful, dislocate all the time. IT is very hard because as you say, when distracted they appear to be fine but on resting it is a disaster. We are still struggling with her jaw issues, but have been told it is just part of the EDS. At the moment she is taking painstop for the pain but it is awful when you have no idea what to do. Was nice to hear a story that was so similar to ours. Sometimes you feel rather alone!
kathy

]]> By: Kerry Read http://jointpainrelief.com.au/parent-stories/rachel-tmj-journey/#comment-12 Kerry Read Sat, 11 Jul 2009 03:12:26 +0000 http://jointpainrelief.com.au/?page_id=173#comment-12 Hi Christine, I stumbled across your post and wondered if your daughter is still having problems? I am a jaw physio and know how difficult these jaw problems can be when you have an inflammatory arthritis. The usual type of physiotherapy approach can often be way too much and actually counter productive. I am hoping you are getting some good solutions now she must be around 16 yrs old, but just wanted you to know that she is not alone, and she hasn't exaggerated her pain. Hi Christine,
I stumbled across your post and wondered if your daughter is still having problems? I am a jaw physio and know how difficult these jaw problems can be when you have an inflammatory arthritis. The usual type of physiotherapy approach can often be way too much and actually counter productive.
I am hoping you are getting some good solutions now she must be around 16 yrs old, but just wanted you to know that she is not alone, and she hasn’t exaggerated her pain.

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