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Stories from Parents of Kids With Joint Pain

We invite you to submit your story about parenting a child with a rheumatology condition.  Here is the first in our collection.

  • Growing Up with Rheumatoid Arthritis
  • Juvenile Rheumatoid Arthritis – The Story of Amanda
  • Rachel and her TMJ Journey

Related Posts - Arthritis Story

  • Growing Up With Juvenile Arthritis
  • Living with Temporomandibular Joint Disorder (TMJ)

Related Posts - Managing Emotions

  • Those Ouch Moments
  • How To Swap Everything And Keep Your Husband
  • Because I Am Imperfect
  • The Mother of All Jobs
  • Caring For A Child With Arthritis
  • How Food And Family Help To Cope With Chronic Pain
  • What Does Coping with Chronic Pain Look Like?
  • Important Message for Parents of Children With A Chronic Condition
  • Ice Breaking: Assisting Children During Hospital Stays
  • Chronic Pain Management - Small Words Give Great Hope

  • What You Can Control

    You may not have control of what your child has to deal with. You have total control over how well you take care of yourself. If you look after yourself you can handle anything life throws at you.

  • During school term Parents Tea/Coffee – All welcome

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    Monday 4.00pm-5.00pm Kalparrin P.M.H. West Perth

    Wednesday 1.00pm-2.00pm Cafe Whyllie Arthritis Centre Shenton Park

    Saturday 8.00am-9.00am Tea Room Whyllie Arthritis Centre Shenton Park

  • Recent Posts

    • Alternative Medicine and Joint Pain
    • How To Get Resources for Your Child At School
    • Peer Training for Parents of Kids In Pain
    • TMJ – Arthritis and the Jaw
    • Pediatrician’s Guide to Ehlers-Danlos
    • Growing Up With Juvenile Arthritis
    • Ordinary is EXTRAORDINARY
    • Comedy for Comfort
    • Those Ouch Moments
    • Ehlers-Danlos And Your Eyes
    • OMG thank you OM4
    • What Are The Work Options For Young People With Arthritis?

  • Useful Links

    • American Juvenile Arthritis Organisation
    • Ehlers-Danlos National Foundation
    • Ehlers-Danlos Online Support Group
    • Pediatric Rheumatology INternational Trails Organisation
    • The Children’s Chronic Arthritis Association

  • Post Categories

    • Arthritis Story (2)
    • Ehlers-Danlos & Hypermobility Disorder (7)
    • Hospital Stays (4)
    • Hospital Systems & Procedures (3)
    • Managing Emotions (13)
    • News (8)
    • Pain in Young People (1)
    • Pharmacy (1)
    • Physical Therapies (3)
    • Research (1)
    • Resources (2)
    • Rheumatology Issue Explained (2)
    • School Days (1)
    • Siblings (1)
    • Support Groups (2)

  • Subject Index

    anger arthritis atmospheric pressure boundary setting coffee mornings coping counselling crisis plan Dr Murray Ehlers-Danlos syndrome fear flare ups grief hope hydro hydrotherapy joint pain joint pressure library medications natalie bennett-bremner networking on the ward other parents parents pharmacist pills questions resilient family rheumatology department rheumatology liaison nurse rheumatology outpatient clinic school self care Siblings sport stress supplies teachers teenagers using names Ward 17 weather wellness day worry

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