About

picture-15My name is Julia Sutton and my daughter was under the care of the PMH Rheumatology Department for some years. She has recently become the patient of a specialist pain unit at Fremantle Hospital.

At four years of age she started to develop the symptoms of a rare joint disorder. It was not known exactly what lay ahead. As some of the possibilites were pretty alarming we were advised not to google it.

Pretty soon we were Rheumatology frequent flyers and strategies for joint pain relief became part of our daily lives.

I think PMH has a brilliant rheumatology department with an outstanding team. We have also been impressed with the work of the Pain Unit at Fremantle Hospital. Both hospitals stretch their limited resources a long way.

I think what is missing is organised parent support – which is probably best arranged from within our own parent community.

So that is the reason for starting this project. To connect, to inform, to share and to help each other.

What would you like included on this site? What do you wish you had learnt a bit earlier? What is your experience? I would love to hear from you.

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